Help Us Spread Awareness About Smith-Magenis-Syndrome
Join Us for This years
SMS Champions Walk-A-Thon
Date & Location TBA
Walk, run or just come to hang out, meet some new friends, and help us make a difference in our community. This family-friendly event will feature a 1-Mile Walk, 5K & 10K Run, food, refreshments, coffee and yard games sponsored by local vendors.
How You Can Get Involved
Donate
Make a direct donation to PRISMS to help fund critical research, support services, and resources for families affected by Smith-Magenis Syndrome.
If you are donating directly to PRISMS, please mention SMS Champions in the Special Instructions.
Participate
Sign up for our annual Walk-A-Thon and join a community of advocates walking together to raise money and awareness for SMS research & families.
The event is free, but registration is required to receive a goody bag and BBQ Lunch.
Sponsor
Partner with us as a business sponsor to help cover event costs so that every dollar raised goes directly to supporting the SMS community.
If you are donating directly to PRISMS, please mention SMS Champions in the Special Instructions.
What is
Smith-Magenis-Syndrome (SMS)
What is SMS?
SMS is a rare disorder that occurs in between 1 out of every 15,000 to 25,000 births. Although the number of individuals diagnosed with SMS has increased in recent years due to better diagnostic tools, the syndrome likely remains under diagnosed.
Hazel's Story
Our journey with Hazel has led us to want to raise awareness for this syndrome. As first-time parents, you can imagine what was going through our minds: What is SMS? What is BHD? I’ve never heard of this. Wow, the internet is terrible. Is this all true?
Join Us In Making A Difference At This Year's SMS Champions Walk-A-Thon
What To Expect
You can expect a family-friendly day filled with crafts, face painting, kids’ activities, yard games, volleyball, and a BBQ lunch with refreshments.
Race Information
This year, in addition to our 1 Mile Walk, we’re excited to offer 5K and 10K race options. Every registered participant will receive a goody bag with a shirt, and fuel for your race. When you register, simply choose your race distance and shirt size. Details to come.
Donation Information
While the event is free, our suggested donation to attend is $25 per person. All donations are tax-deductible and go directly to PRISMS. We are actively looking for businesses to partner with us to cover event costs so that every dollar raised goes directly to supporting the SMS community.
We are hoping to surpass last year’s record of over $10,000!
Proudly brought to you by
Prisms, Our Friends & Local Sponsors
Frequently Asked Questions
What is SMS Champions?
SMS Champions is an annual event that Janet & Trent Standard have created in partnership with PRISMS to raise money and awareness for SMS.
What is Prisms?
PRISMS is a non-profit dedicated to providing information and support to families of persons with SMS, sponsoring research and fostering partnerships with professionals to increase awareness and understanding of SMS. Learn more at prisms.org
Do I Need to Register if I Don't Walk/Run
You don’t have to walk or run, but if you are planning on attending this event, we kindly ask that you would register. This helps us plan accordingly.
Is my Donation Tax-deductible?
Yes. PRISMS is a non-profit 501(c)(3) organization. All donations are tax-deductible. After the event you will receive a statement from PRISMS.
I have a question?
Email us at smschampions24@gmail.com with any questions. We’d love to help.